Between Normality and Abnormality: Understanding the Social Support of People with Physical Disabilities Among Family
DOI:
https://doi.org/10.25273/gulawentah.v9i2.21211Keywords:
people with physical disabilities, social support, stigmaAbstract
People with physical disabilities in Indonesia face a multitude of challenges, from physical barriers to social stigmas. This study examines the complexities of how people with physical disabilities navigate these challenges, focusing on the role of social support within families. The stigma of disability is often shaped by perceptions of "normal" versus "abnormal," which deeply influence the social support of people with disabilities. By analyzing two case studies in Yogyakarta, Indonesia, this article highlights how differing family perceptions (whether they see the disability as normal or abnormal) affect the nature and effectiveness of the social support provided. The research reveals that families who view disabilities as a normal variation tend to offer more supportive environments, fostering better psychological well-being and greater participation in family life. Conversely, families who perceive disabilities as abnormal often provide less emotional support, negatively impacting the individual’s sense of belonging. This study underscores the importance of shifting societal and familial perceptions to reduce stigma and improve the quality of life for people with physical disabilities. The findings contribute to the ongoing discourse on disability inclusion and provide a foundation for policy recommendations to foster a more supportive and inclusive environment.
Downloads
References
Banks, L. M., Kuper, H., & Polack, S. (2017). Poverty and disability in low-and middle-income countries: A systematic review. PloS one, 12(12), e0189996. https://doi.org/https://doi.org/10.1371/journal.pone.0189996
Barnes, C., & Mercer, G. (2003). Disability. Polity, Cambridge and Malden, MA.
Blatter, J., & Haverland, M. (2012). Designing case studies: Explanatory approaches in small-N research. Springer.
Encorporado, M. V., Razonable, S. Y., Ababon, J. B., Pasilang, B., Regulacion, M. P., & Sasan, R. A. A. (2023). Correlation Between Reinforcers and Level of Self-Esteem. Journal of Learning and Development Studies, 3(3), 34-51. https://www.al-kindipublisher.com/index.php/jlds/article/view/6210
Grusec, J. E., & Hastings, P. D. (2014). Handbook of socialization: Theory and research. Guilford Publications.
Kafaa, K. A., & Nurhadi, N. (2023). An Inclusive Social Health Insurance for People with Disabilities in Three Southeast Asia Countries: A Systematic Review. Jurnal Ilmu Sosial dan Ilmu Politik, 27, 103-122. https://ir.lib.ugm.ac.id/id/eprint/7404/
Kent, E. E., Mollica, M. A., Dionne-Odom, J. N., Ferrer, R. A., Jensen, R. E., Ornstein, K. A., & Smith, A. W. (2020). Effect of instrumental support on distress among family caregivers: Findings from a nationally representative study. Palliative & supportive care, 18(5), 519-527. https://doi.org/https://doi.org/10.1017/S1478951520000036
Krahn, G. L. (2011). WHO World Report on Disability: a review. Disability and health journal, 4(3), 141-142. https://doi.org/https://doi.org/10.1016/j.dhjo.2011.05.001
Mitra, S., Posarac, A., & Vick, B. (2013). Disability and poverty in developing countries: a multidimensional study. World Development, 41, 1-18. https://doi.org/https://www.sciencedirect.com/science/article/pii/S0305750X12001465
Mitra, S., & Yap, J. (2022). The 2022 Disability Data Report. Available at SSRN 4492005. https://papers.ssrn.com/sol3/papers.cfm?abstract_id=4492005
Mustari, M. (2018). Government Duty In Fulfillment Of Rights To Work For People With Disability In Makassar South Sulawesi. 1st International Conference on Social Sciences (ICSS 2018),
Officer, A., & Posarac, A. (2011). World report on disability. World Health Organ: Geneva, Switzerland. https://www.pfron.org.pl/fileadmin/files/0/292_05_Alana_Officer.pdf
Putri, E. A. (2023). Implementasi Program Pelayanan Penyandang Disabilitas (Studi Kasus: Pelayanan Bantuan Dinas Sosial Terhadap Orang orang Berkebutuhan Khusus di Kota Malang).
Sarafino, E. P., & Smith, T. W. (2014). Health psychology: Biopsychosocial interactions. John Wiley & Sons.
Shakespeare, T. (2006). Disability rights and wrongs. Routledge.
Sheridan, C. L., & Radmacher, S. A. (1992). Health psychology: Challenging the biomedical model. John Wiley & Sons.
Stake, R. E. (2013). Multiple case study analysis. Guilford press.
Stucki, G., Cieza, A., Ewert, T., Kostanjsek, N., Chatterji, S., & Üstün, T. B. (2002). Application of the International Classification of Functioning, Disability and Health (ICF) in clinical practice. Disability and rehabilitation, 24(5), 281-282. https://doi.org/https://doi.org/10.1080/09638280110105222
Sullivan, T. A. (2020). Census 2020: Understanding the issues. Springer Nature.
Wahat, N. W. A., Ahrari, S., D'Silva, J. L., Mohamed, N., & Hassan, S. A. (2021). Validity and Reliability of a Self-Acceptance Scale for Youth with Physical Disabilities. Pertanika Journal of Social Sciences & Humanities, 29. http://119.40.116.186/resources/files/Pertanika%20PAPERS/JSSH%20Vol.%2029%20(S1)%202021/04%20JSSH(S)-1490-2021.pdf
Xi, Y., Yu, H., Yao, Y., Peng, K., Wang, Y., & Chen, R. (2020). Post-traumatic stress disorder and the role of resilience, social support, anxiety and depression after the Jiuzhaigou earthquake: A structural equation model. Asian journal of psychiatry, 49, 101958. https://doi.org/https://doi.org/10.1016/j.ajp.2020.101958
Yin, R. K. (2018). Case study research and applications. Sage Thousand Oaks, CA.
Downloads
Published
Issue
Section
License
Copyright (c) 2024 Kafa Abdallah Kafaa

This work is licensed under a Creative Commons Attribution-ShareAlike 4.0 International License.